1.20.2009

Speak Out, Get Involved, Inspire Action


Help Expand Cystic Fibrosis Research & Care
Please, YOU can make a difference in just 5 minutes.
Please tell Washington to support childrens health.
http://www.cff.org/GetInvolved/Advocate/
They are going to use $ to support research anyway, please help encourage them to support research in finding a cure for Cystic Fibrosis. Cystic Fibrosis is an idividual disease, and affects everyone differently.

If you didn't know it already, Lindsey, my baby was diagnosed with Cystic Fibrosis when she was about 4 weeks old. We are blessed that she is thriving right now, no signs whatsoever. Right now we are taking precautions to keep her healthy in hopes it will be a long time to come before we see any kind of symptoms. The doctors can't promise us anything one way or another about her health. They can't tell us when she will be affected, right now we take her to the pediatrician and to see the doctors at the Childrens Hospital in Madera on a regular basis. They will let her body tell us what we need to do with her. If you don't know somebody with CF already, chances are you will sometime since they are diagnosing CF during newborn screenings and adults are now being diagnosed more often as well. We need a cure!

Thank you for helping us do our part...

1 comment:

Deb M. said...

Action is taken, Lisa. Thank you for sharing the CF link with all your blog visitors. I had no idea Lindsey had been diagnosed with CF...I pray that she will never have any symptoms or problems. Doctors thought my son had CF when he was a baby, thankfully it was not. His doctor was a CF specialist and they have come so far with treatment. It is time for a cure & I believe with action it could be soon. Keeping you & your precious baby in my thoughts & prayers. She's adorable!!

Hugs & Blessings...
Deb